This page highlights how Mobilise-D was guided by patients throughout the duration of the project, and indeed, continues to be as we progress our work further.
Patient and Public Involvement and Engagement are critically important for all research projects to make sure that the patient perspective is embedded in all stages of the process.
We could only ensure our success by working with people that the research aims to benefit.
In Mobilise-D we have worked closely alongside people with multiple sclerosis, Parkinson’s disease, chronic obstructive pulmonary disease and people recovering from hip fracture.
On this page, you will find resources about how we designed our patient and public involvement structures and what lessons we have learned from this which can be used by researchers looking to design similar structures. We also have several videos which have been co-designed with patient advisors to highlight the importance of walking, how patient data was used in the study, and the impact that patient involvement has had on the work for Mobilise-D.
We’re excited to announce the release of two new infographics, co-created with our patient advisors! These visuals, created alongside Nifty Fox Creative, dive into two key topics: data sharing and the impact of…
Walking, a seemingly simple and ordinary activity, is an integral part of our daily lives. But did you know that it holds the power to reveal profound insights into our…
On Saturday, September 23, 2023, the Mobilise-D team at University Hospital Erlangen, Germany, informed individuals with Parkinson’s disease (PD) about the status, progress, preliminary results, and future perspectives of the…
On the 10th of May 2023, Mobilise-D continued with its webinar series, outlining some of the key learnings and work of the consortium. The focus of this webinar was on…
This important work was guided by the invaluable contributions of our patients and public advisors. Our patient and public advisory group consisted of over 12 members who shared their perspectives, insights and advice with us. They worked alongside us to:
They were equal partners throughout the study. We extend our heartfelt thanks to each of them for their work on this project.
Wealth management
Pensioner
Research Associate
Coordinator at AISM
Patient Expert
Veteran of Banking Technology software industry
Resource Development Director
Retired (M&E; Construction)
Professor Emeritus
Engineer
Retired Medical Doctor and Geriatrician